Home Forums Specific Topic Forums Parents of Diagnosed Children Right Temporal Anterior Medial Tumor – 12 Year Old Son

This topic contains 1 reply, has 1 voice, and was last updated by July 26, 2017 at 3:32 am.

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  • #755 Score: 0

    Jennifer K

    Hi everyone. My son, Jackson, had his tumor resection this past Thursday, July 19th. The doctors were amazing. The procedure took about 4 1/2 hours to complete. He spent a little over 24 hours in the pediatric ICU and then then almost 48 hours in the regular pediatric wing. We are home now and he is doing remarkably well. We are so blessed that he seems to have no impairment of any kind as a result of the surgery. He is on Keppra as a precautionary treatment, but very low dose, and we think it is only temporary as long as he does not show seizure activity. Post-op and staple removal is scheduled for the 30th. Thank you all for your insights, input, and support through our journey of deciding on treatment and leading up to the surgery. This site is a wonderful resource and refuge. So happy to have found it and you all.

  • #751 Score: 0

    Jennifer K

    My 12 year old son was diagnosed with a tumor in the anterior medial portion of his right temporal lobe at the beginning of April. We found it as a result of an MRI done after going to the doctor about odd headaches. He described the headaches as shocks of pain, though not electrical, coming in pulses sometimes with dizziness and once with funny vision. They came in waves of varying pain levels. I knew they weren’t like normal headaches and he has never had a lot of headaches, so I made a pediatrician appointment. Given family history of aneurysms, our pediatrician ordered the MRI as a safeguard and they found the tumor. All tests (neuro exams, EEG) have come back showing no impairment as the result of the tumor. Two doctors have classified the headaches as migraines probably not related to the tumor at all. They feel it’s just a coincidence that we found the tumor because of the migraines. No biopsy has been done and they say from looking at the MRI that the tumor looks “low grade and slow growing” (benign???). They also say it’s something that could have been there for a while. He still has slight migraines that can be controlled by Motrin, but those have all but stopped since school ended. Again, they can’t even say conclusively that the tumor and migraines are related.
    We have decided to go the route of surgery, which we had scheduled for the 12th of July. Now another specialist has been consulted and will likely be the one to operate given that he is much more experienced in this type of surgery. That is a good thing, but the thought of having to change the date again is so frustrating. We are keeping our fingers crossed that it will be as close to the 12th as possible since we are now looking at recovery time as it will relate to going back to school at the end of August!
    I’m very thankful for this site as a resource and as a place to find others who understand. I look forward to getting to know all of you as we continue on this journey.

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